New Years 2014 Here We Come

New Years 2014 Here We Come

Thursday, December 15, 2011

Making a Hard decision:

        My disease has really been progressing, even after being on 6MP for 8 weeks. So, my doctor gave me two choices: a medicine called Remicade given in the hospital through IV or a therapy called Interal Therapy. I was really thinking about the interal therapy but really had many questions.  I also thought alot about the pros and the cons. It would help me gain weight and also it would give me a lot of nutrition. There are a few others but those two are the big ones. I just have a lot of questions and need to do a lot of research. But, I also do have questions for you.  If anyone is reading this that has had interal therapy please comment so I could ask some questions. If you don't know what interal therapy is and how it can help people with Crohn's, check out the link. Many girls I have read about say that interal therapy has really helped them but, they have had to make some serious life changes.  Read more of their stories here.  (Hope it helps)

Getting diagnosed:

            Hi, my name is Sophia. I was diagnosed with Crohn's Disease on April 14, 2011. So, I have only had my disease for 8 months. When I was little I always had problems with my stomach. Now that I am 13 I finally know what I have. When I was little, I was always in pain. I went to many doctors but they just said do this or take that and you'll be fine. I was getting so tired of those answers so my mom did some research on a good hospital and doctors. Then we found and are currently going to Goryeb Children's hospital. It is a great hospital and the doctors there are also great. In April, I had a colonoscopy and an endoscopy. Soon after, my doctor told me I have something called Crohn's Disease.
           Sitting there in my hospital bed thinking I don't even know what crohn's disease is, I thought, well I know that some things are going to have to be changed. After the procedure, I went in for a hospital visit to discuss. It was so much to take in and realize that what I have isn't really just a stomach problem. Starting out, I got put on a medicine called Pentasa and then later Prednizone then Enticort ... My medicine just kept changing. I started getting more tired but I got set up with something called a 504 plan in school. It gives me a lot more freedom to go to the bathroom when I need to and also to keep an extra set of textbooks home. That helps a lot because being in 8th grade I have a lot of homework, and it's a pain to lug books back and forth from home and to school again. My doctors have been really helpful and so have my parents. If you have any questions or is someone who's had this disease for awhile then comment. I could answer and also ask any questions myself.