New Tube, New Side

              Yesterday was Saturday the 28th and I had an appointment with my home healthcare nurse Tracy, to change my tube. I am not going to lie, although I had it in once before I was still nervous about changing my tube again. Can you believe it, it has already been 4 weeks since we started Enteral Therapy! Well it was almost time. Tracy was coming to the house at 4:00 and it was 3:55. The dogs were barking, Tracy was here and it was now time to change the tube. I was getting REALLY NERVOUS.

However, I knew that because Tracy does it so fast, it would be over and done with in about a minute. Then, the words that came out of Tracy's mouth really took me by surprise. She said "Okay, you need to go and get your little mirror because YOU ARE PUTTING THE TUBE IN YOURSELF." EXCUSE ME ... WHAT DID YOU SAY? Yes, Tracy just told me I had to put the tube in myself. I was like REALLY, and I just could not believe what I just heard?

Still not believing what I had to do, I went upstairs and grabbed my mirror, went back into my kitchen and sat down. I had to put the tube in my left nostril so that I could give my right nostril a break. After a few tries, I realized that the tube kept on getting stuck in the same spot. I was ready to cry I was really upset and now my nose was irritated which made getting it in even harder. My mom even had to leave the room, she was ready to cry.

Then, I tried one more time and still nothing. This just wasn't working, but I was going to give it one last try. This time I twisted and pushed and again it got stuck. Finally, my dad told me to push it up and helped me to get it past the part where it kept getting stuck. IT WORKED! Once you get it through your nose, it's easy. Then you just push it down. It was really stressful, but I did it and I am proud of myself! Well at the end it was all good because I got a monkey sticker to put on my face. Now I can say that I put the tube in and took it out all by myself ..... hahaha bye!

The Good News!

              Well I told you in my last post that I would write a new post after I went to the doctor's. So, this is what this post is about. In the many times I have been to the doctor since last year, I have never ever received good news. But, today was different! I GOT GOOD NEWS!!!!! I have gained exactly 1 pound and have grown a half of an inch since my last visit a month ago. I really don't see what is so special about that, but my parents are thrilled. My mom even said Yay were going to have "A half Inch party"! Not sure what thats supposed to mean but we never did. But I will take good news over bad any day. I am finally glad to say I am progressing in my health and not declining. Well I have to go take a shower! Yipee haha bye!

Update on my Life!

            My weekend was absolutely great! Three of my best friends came over and we had such a great time. I got all caught up on what's new in school and all the latest talk! Haha! I just recently finished my first week of home instruction and it went really good. Home instruction is when my teachers come to my house until I am well enough and ready to go back to school. Doing my school work at home is a little weird but it's also pretty fun. I find it really helpful because I have the teachers all to my-self. I find I'm getting more work done and in less time too. I really miss my classmates though and I really hope that I can be back in school soon. I have a doctors appointment tomorrow and I am really hopping everything is going to go okay. I am really really hoping that I can get back to school really really soon. I miss everyone in school and I am so glad I got to see some of my friends! I will definitely update you when I get back from my doctors appointment. Night!

Sinus Infection :(

          For the past week I have had a sinus infection. I really can't get rid off it, because I am on medication that is an immune suppressor. That means it slows down my immune system, which makes it harder for me to fight off infections. See, part of Crohn's disease is that when my stomach tries to break down solid food, it doesn't know what's good bacteria and what's bad bacteria, so it attacks everything. That's one of the reasons why I have had so much stomach pain in the past. So, I now have had a sinus infection that's been lingering for that reason, but I am feeling a little bit better today. My hero throughout this infection is Vicks vapo rub. I think it's magic because I rub it on my chest and then two seconds later I already feel that it is working. It un-stuffs you and works fast. I also kept my box of tissues and brought it every where I went, and thanks to Tylenol cold I am feeling better. Because when you have a tube coming out of your nose, it makes it TEN TIMES HARDER to blow it! Well that's my life as a tubie so far and will kept you posted. Bye!  

Home Instruction:)

           Today is Monday the 9th and I start home instruction. Home instruction is where my teachers from school come to my house and teach me instead of me going to school. I have a few reasons of why I am not going to school, but there is one really big one. That reason is I am later on going to be coming off a medication and I don't know if that's just going to make me more sick, so the safest thing to do is stay home. Today I have Connections and Language Arts. I have different teachers come in at different times everyday! So, I really am a little excited about how this is going to go and also getting back to school work. I miss my friends, but I really need to focus on getting better right now. Well My first teacher is coming at 3:45 and the subject is connections, but Mrs. Kopp is sick so Mrs. Heller my language arts teacher is covering for her. Thanks Mrs. Heller and feel better Mrs. Kopp! I am going to get my school work ready so bye guys!

Update Jan. 5, 2012

          Today I didn't do much of anything. I had gotten up at 10:30 which is early for me because I am still in the habit of going to bed at midnight and waking up at noon. I then went directly into the shower after that, but something didn't feel right. I felt weak to stand up so I just took a bath. After that I went right into bed again. It seems that I must of caught a cold because I have been sneezing and my nose has been running and my head feels like it's going to explode. My cousin had just passed away a few days ago and was supposed to go to his wake but because I wasn't feeling well I wasn't able to make it. The rest of the day I just chilled out and watched netflix with my brother. I just took it easy for the rest of the day. Now I am just hanging out with my parents and we are just talking and reading in our warm and cozy house! Well it's bed time, goodnight.

Getting out of the house!! :)

          Yesterday was Monday and it was definitely a good day! It was the first day that i actually went somewhere out of my house and the neighborhood. I went to the Palisades Mall! It's so big!! My cousins had invited me the night before to come with them and go to a place in the Palisades mall called Fun City. When we got there we first did something called magic Quest, and it was great. There was an arcade, lazar tag and much more. But when I went into lazer tag I had to wear a vest over my back-pack. It was pretty heavy, and every-time I got shot it vibrated and that made me feel sick, so I stopped. I had gotten a lot of stares which at some points made me feel angry and annoyed but, I am strong and got through it! Hopefully from now on I will just improve on my health and will be able to go to more places and feel confident and good!

3 Days after the tube!!

               Today is my third day into my journey with the tube. But, I think we should start from the beginning. When my nurse Tracy came she put in my Tube. Oh boy was that uncomfortable. I gagged and coughed and everything. The rest of that day I just stayed on thew couch and watched movies like Dolphin Tale. I then went to bed late that night because I was in a lot of pain. The feedings were making me sick, so, I unhooked the formula bag for the night and went to bed downstairs on the couch, with my mom on the recliner right next to me. The next morning I woke up at 5 a.m. By then, I could feel that I was so much more used to the tube already! So, I went into the kitchen hooked myself back up and then went to bed again. The second day was then New Year's Eve. I wasn't feeling to well all day so I was a couch potato. then that night I took a break from my feedings and went across the street to get away. I had a great night and thankfully was feeling okay!
               Today is the or shall I say was the third day. My mom said the color of my skin on my face came back and I had a lot more energy. My cousins came over today too.We had a great time. I have a back-pack specially designed for my pump and IV drip bag. So, I can go many different places with my pump so that I can continue my feedings. At night which is right now for me, is when I change from my back-pack to my IV drip pole. I am really hoping that by tomorrow I will be feeling a lot better!

Friday December 30, 2011

               After many days of deciding and thinking I have chosen to do Enteral therapy. Lets just say it benefit me a little more! Well today is Friday, but many of you don't know what that means. That means that my personal nurse Tracy is coming to my house and putting the tube in me. At this time I had just finished my last meal from my favorite place to eat in town and that is Panera! I had chicken noodle soup which is my absolute favorite and also Caesar salad and Panera's salads have amazing croutons!!! Although I didn't really enjoy it that well because I am not feeling to good. I have many mixed feelings about this tube, I am excited, I am nervous and I am a little scared about it. I will just have to tell you how it goes a little later when I am feeling better to write again. Well my nurse is here wish me luck, got to go Bye!